February 12, 2023February 17, 2023 Does everyone with ALS lose voice? Does everyone with ALS lose voice? The severity of symptoms experienced by patients with ALS can change on an individual basis, but all commonly experience some level of speaking difficulties. This is caused by the muscles of the tongue, lips, vocal cords, and chest being affected by the disease. Do symptoms of ALS come and go? Most people with ALS live 5 years or less after their diagnosis, but some live much longer. Research is underway to find treatments to extend and improve the quality of life. With MS, the course of the disease is harder to predict. Your symptoms may come and go, and may even disappear for months or years at a time. Do all ALS patients become paralyzed? As the disease progresses to its final stages, almost all voluntary muscles will become paralyzed. Do all MND sufferers lose their voice? Not everyone with MND will develop speech problems – the MND Association provides information about symptoms and types of MND. The loss of speech could be frightening and hard to adjust to. Can you talk if you have ALS? ALS is progressive, so speaking will continue to get more difficult over time. Some ALS patients choose to record their voices while they can still speak clearly. This voice bank can later be programmed into an electronic device, allowing them to communicate using their own voice rather than a computer-generated one. Can ALS start with speech problems? Speech problems (dysarthria) are common and among the first symptoms of ALS. They occur during the early stages and usually worsen as the disease progresses. What are usually the first signs of ALS? Early symptoms include: Muscle twitches in the arm, leg, shoulder, or tongue. Muscle cramps. Tight and stiff muscles (spasticity) Muscle weakness affecting an arm, a leg, the neck, or diaphragm. Slurred and nasal speech. Difficulty chewing or swallowing. What kind of speech problems do you have with ALS? ALS is a progressive neurological disease that may present initially with speech/voice difficulties as the primary symptoms in up to 10 to 15 percent of patients, including: Spastic/strained voice Slurred speech Hypernasal voice What happens to the body when you have ALS? In patients with ALS the gradual death of nerve cells in the brain and spinal cord that control muscles can result in the progressive weakening of muscles throughout the body. The severity of symptoms experienced by patients with ALS can change on an individual basis, but all commonly experience some level of speaking difficulties. Is there a way to communicate with someone with ALS? As technology advances, there is a growing variety of communication aids (called alternative and augmentative communication, or AAC) that may help a patient with ALS communicate more easily as the disease progresses. An occupational therapist or speech and language specialist can help determine which technology is best for the patient. Is there a cure for the disease ALS? There is no cure for ALS – only supportive care. The disease is variable, but half of ALS patients die from respiratory failure within three years of onset of symptoms. With some slowly progressive forms of the disease, patients may live for 10 years. Questions